2013
03/18/2013 - The Perlman Music Program Cocktails, Dinner and a Chamber Music Concert in Palm Beach
03/15/2013 - Asia Week New York Kick-off Reception at the Solomon R. Guggenheim Museum,
03/12/2013 - Third Annual Fountain House Associates Spring Breakfast: “Between The Sheets”
03/05/2013 - NYU LANGONE MEDICAL CENTER’S FACES GALA HONORING LEON CHARNEY RAISED $4.5 MILLION
02/23/2013 - "I Have A Voice" fundraiser for Gigi's PLAYHOUSE
02/23/2013 - Eleventh Annual “Thanksgiving in February” Feeds over 500 of New York’s Needy
02/21/2013 - The French Heritage Society's Annual Palm Beach Gala Dinner
02/21/2013 - 24th Annual Gala of Heart & Soul Charitable Fund Auction at Christie’s
02/21/2013 - Eva Longoria Hosts Benefit for “Food Chains” Documentary - Exposes Exploitation in Am’s Farm Labor
02/13/2013 - Verdura hosts a fundraiser for“The Michael Feinstein American Songbook Initiative”
02/13/2013 - Lost and Found: The Pinajian Discovery, a benefit preview for the Fund for Armenian Relief
02/08/2013 - 56th Annual Red Cross Ball in Palm Beach
02/07/2013 - Lost and Found: The Pinajian Discovery benefit preview for the Fund for Armenian Relief
02/06/2013 - All Star Orchestra’s Preview Screening of their New Classical Music and On-line Education Television
01/29/2013 - Urban Greenwalk
01/23/2013 - The Perlman Music Program Fourth Charity Wine Auction
01/20/2013 - Budapest Festival Orchestra
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Jeffrey Modell Foundation Spring Ahead Gala ‘09
04/23/2009 - By Cipriani 42nd Street, NYC

Jeffrey Modell Foundation Spring Ahead Gala ‘09

First Baby Saved by SCID Newborn Screening Honored at Jeffrey Modell Foundation Spring Ahead Gala ‘09

The Jeffrey Modell Foundation (JMF) honored 10-month-old Dawson Bornheimer, the first baby in the world to be diagnosed, transplanted and cured of Severe Combined Immunodeficiency (SCID) as a result of mandatory newborn screening, on Thursday, April 23rd at Cipriani 42nd Street, NYC. SCID, which is commonly known as “Bubble Boy” disease, is fatal if not treated in the early months of life.

Expert physicians from all over the world joined JMF supporters to celebrate Dawson Bornheimer as he received the “Ultimate Dream” award. SCID is one of the 160 Primary Immunodeficiency Diseases that may affect an estimated 3-6 million Americans. A newborn baby with SCID will not survive to his or her first birthday; however, a bone marrow transplant can cure the disease.

Bone Marrow Transplants now have 95% success rate if screened early. If the condition is discovered 6-8 months into life, the success rate drops dramatically, the costs are prohibitive and the baby may not survive, which is why newborn screening is so vital. You have to know if your baby has SCID, and the only way to know is to screen! The Jeffrey Modell Foundation funded the first population screening for newborns in the state of Wisconsin, where all newborns are being screened currently.

Founders Vicki and Fred Modell established the JMF in 1987 in memory of their son, Jeffrey, who died at the age of 15 from complications of Primary Immunodeficiency, a genetic defect that can be fatal and that affects an estimated 3-6 million Americans. Today, the JMF is a multifaceted global nonprofit organization devoted to the early and precise diagnosis, meaningful treatments, and ultimately cures of PI, and is focused on physician education, public awareness, and clinical and basic research to better understand and treat PI. There are 52 Jeffrey Modell Research and Diagnostic Centers worldwide. For more information, please go to www.info4pi.org.

Photos: Fred Marcus Photography


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